The French DC Society was created on April 2007 by parents whose child is suffering from this rare disease. It's a 1901 association declared in the Prefecture of Herault under the number W343004458.
It's the first time in France and the Society wants to inform and support the research.It will fight to improve the treatments and the informations about this pathology .
The French DC Society has several goals :
- Provide an uptodate and accurate information;
- Collect money for research teams;